Skip to main content
N I Direct government services

Main navigation

  • Home
  • News
  • Contacts
  • Help
  • Twitter
  • Facebook
  • YouTube
  • RSS

Translation help

Translate this page

Select a language

  • Afrikaans — Afrikaans
  • Albanian — Shqip
  • Amharic — አማርኛ
  • Arabic — العربية
  • Armenian — Հայերեն
  • Assamese — অসমীয়া
  • Aymara — Aymar aru
  • Azerbaijani — Azərbaycan dili
  • Bambara — Bamanankan
  • Basque — Euskara
  • Belarusian — Беларуская
  • Bengali — বাংলা
  • Bhojpuri — भोजपुरी
  • Bosnian — Bosanski
  • Bulgarian — Български
  • Cantonese — 廣州話
  • Catalan — Català
  • Cebuano — Sinugbuanong Binisayâ
  • Chichewa — Chichewa
  • Chinese (Simplified) — 简体中文
  • Chinese (Traditional) — 繁體中文
  • Corsican — Corsu
  • Croatian — Hrvatski
  • Czech — Čeština
  • Danish — Dansk
  • Dhivehi — ދިވެހި
  • Dogri — डोगरी
  • Dutch — Nederlands
  • English — English
  • Esperanto — Esperanto
  • Estonian — Eesti
  • Ewe — Eʋegbe
  • Filipino — Filipino
  • Finnish — Suomi
  • French — Français
  • Frisian — Frysk
  • Galician — Galego
  • Georgian — ქართული
  • German — Deutsch
  • Greek — Ελληνικά
  • Guarani — Avañe’ẽ
  • Gujarati — ગુજરાતી
  • Haitian Creole — Kreyòl ayisyen
  • Hausa — Hausa
  • Hawaiian — ʻŌlelo Hawaiʻi
  • Hebrew — עברית
  • Hindi — हिन्दी
  • Hmong — Hmoob
  • Hungarian — Magyar
  • Icelandic — Íslenska
  • Igbo — Asụsụ Igbo
  • Ilocano — Ilokano
  • Indonesian — Bahasa Indonesia
  • Irish — Gaeilge
  • Italian — Italiano
  • Japanese — 日本語
  • Javanese — Basa Jawa
  • Kannada — ಕನ್ನಡ
  • Kazakh — Қазақ тілі
  • Khmer — ភាសាខ្មែរ
  • Kinyarwanda — Ikinyarwanda
  • Konkani — कोंकणी
  • Korean — 한국어
  • Krio — Krio
  • Kurdish (Kurmanji) — Kurdî
  • Kurdish (Sorani) — کوردی
  • Kyrgyz — Кыргызча
  • Lao — ລາວ
  • Latin — Latina
  • Latvian — Latviešu
  • Lingala — Lingála
  • Lithuanian — Lietuvių
  • Luganda — Luganda
  • Luxembourgish — Lëtzebuergesch
  • Macedonian — Македонски
  • Maithili — मैथिली
  • Malagasy — Malagasy
  • Malay — Bahasa Melayu
  • Malayalam — മലയാളം
  • Maltese — Malti
  • Maori — Māori
  • Marathi — मराठी
  • Meiteilon (Manipuri) — ꯃꯤꯇꯩ ꯂꯣꯟ
  • Mizo — Mizo ṭawng
  • Mongolian — Монгол хэл
  • Myanmar (Burmese) — မြန်မာစာ
  • Nepali — नेपाली
  • Norwegian — Norsk
  • Odia (Oriya) — ଓଡ଼ିଆ
  • Oromo — Afaan Oromoo
  • Pashto — پښتو
  • Persian — فارسی
  • Polish — Polski
  • Portuguese — Português
  • Punjabi — ਪੰਜਾਬੀ
  • Quechua — Runa Simi
  • Romanian — Română
  • Russian — Русский
  • Samoan — Gagana Samoa
  • Sanskrit — संस्कृतम्
  • Scots Gaelic — Gàidhlig
  • Sepedi — Sepedi
  • Serbian — Српски
  • Sesotho — Sesotho
  • Shona — Shona
  • Sindhi — سنڌي
  • Sinhala — සිංහල
  • Slovak — Slovenčina
  • Slovenian — Slovenščina
  • Somali — Soomaali
  • Spanish — Español
  • Sundanese — Basa Sunda
  • Swahili — Kiswahili
  • Swedish — Svenska
  • Tajik — Тоҷикӣ
  • Tamil — தமிழ்
  • Tatar — Татар теле
  • Telugu — తెలుగు
  • Thai — ไทย
  • Tigrinya — ትግርኛ
  • Tsonga — Xitsonga
  • Turkish — Türkçe
  • Turkmen — Türkmençe
  • Twi — Twi
  • Ukrainian — Українська
  • Urdu — اردو
  • Uyghur — ئۇيغۇرچە
  • Uzbek — Oʻzbekcha
  • Vietnamese — Tiếng Việt
  • Welsh — Cymraeg
  • Xhosa — IsiXhosa
  • Yiddish — ייִדיש
  • Yoruba — Yorùbá
  • Zulu — IsiZulu
  • Breadcrumb

    1. Home
    2. Health and wellbeing
    3. Illnesses and conditions
    4. A to Z

    Dystonia

    Dystonia is the name for uncontrolled and sometimes painful muscle movements (spasms). It's usually a lifelong problem, but treatment can help relieve the symptoms. See your GP if you think you might have dystonia. Dystonia is uncommon, but it's best to get the symptoms checked out, (see symptoms section below).

    Symptoms of dystonia

    Dystonia can affect your whole body or just one part. It can start at any age.

    Symptoms of dystonia include:

    • uncontrolled muscle cramps and spasms
    • parts of your body twisting into unusual positions – such as your neck being twisted to the side or your feet turning inwards
    • shaking (tremors)
    • uncontrolled blinking

    The symptoms may be continuous or come and go. They may be triggered by things like stress or certain activities.

     Dystonia symptoms can be triggered by:

    • tiredness
    • stress
    • drinking alcohol or caffeine
    • talking
    • eating or chewing
    • activities like writing, typing or playing an instrument

    When to see your GP

    You should see your GP if you think you might have dystonia.

    Dystonia is uncommon, but it's best to get the symptoms checked out.

    If your GP thinks you could have dystonia, they may refer you to a specialist called a neurologist for tests.

    How dystonia is diagnosed

    To diagnose dystonia, a neurologist may:

    • ask about your symptoms
    • ask about any other conditions you have and if anyone else in your family has dystonia (sometimes it can be inherited)
    • carry out some blood and urine tests
    • arrange a brain scan to look for any problems

    If you're diagnosed with dystonia, your neurologist can tell you which type you have and what your treatment options are.

    Types of dystonia

    Below are the main types of dystonia and the area of the body that is affected.

    • generalised dystonia – affects most of the body
    • myocolonus dystonia  - affects arms, neck and torso
    • cervical dystonia (torticollis) – affects neck only
    • blepharospasm – affects eyes
    • laryngeal dystonia – affects voice box (larynx)
    • task-specific dystonia (writer's cramp) – affects arms and wrists
    • oromandibular dystonia – affects lower face, tongue or jaw

    The Dystonia Society has more on the different types of dystonia.

    Treatments for dystonia

    Treatment can help relieve the symptoms of dystonia. The best option for you depends on the type of dystonia you have. The health professional looking after your care will discuss treatment options with you.

    The main treatments for dystonia include:

    • medication (both injections and tablets)
    • a type of surgery called deep brain stimulation

    Physiotherapy and occupational therapy may also help.

    Surgery for dystonia

    Deep brain stimulation is the main type of surgery for dystonia. It may be offered on the health service if other treatments don't help.

    It involves inserting a small device, similar to a pacemaker, under the skin of your chest or tummy.

    The device sends electrical signals along wires that are placed in the part of the brain that controls movement.

    Living with dystonia

    Dystonia affects people in different ways. The severity of symptoms can vary from one day to another.

    It can have a big effect on your life and make daily activities painful and difficult.

    It's usually a lifelong condition. It may get worse for a few years but then stay steady. Occasionally, it can improve over time.

    Causes of dystonia

    Dystonia is thought to be due to a problem with the part of the brain that controls movement.

    Often the cause is unknown.

    Sometimes it can be due to:

    • an inherited genetic problem
    • Parkinson's disease
    • a stroke
    • cerebral palsy
    • multiple sclerosis
    • Find out more about dystonia on the NHS website

    More useful links

    • How to use your health services

    The information on this page has been adapted from original content from the NHS website.

    For further information see terms and conditions.

    Health conditions A to Z

    Or find conditions beginning with A to Z…

    Skip A to Z menu
    • A
    • B
    • C
    • D
    • E
    • F
    • G
    • H
    • I
    • J
    • K
    • L
    • M
    • N
    • O
    • P
    • Q
    • R
    • S
    • T
    • U
    • V
    • W
    • X
    • Y
    • Z

    Help improve this page - send your feedback

    What do you want to do?
    Report a problem
    Which problem did you find on this page? (Tick all that apply)

    Messages

    You will not receive a reply. We will consider your feedback to help improve the site.

    Don't include any personal or financial information, for example National Insurance, credit card numbers, or phone numbers.

    What is your question about?

    What to do next

    Comments or queries about angling can be emailed to anglingcorrespondence@daera-ni.gov.uk 

    If you have a comment or query about benefits, you will need to contact the government department or agency which handles that benefit.  Contacts for common benefits are listed below.

    Carer's Allowance

    Call 0800 587 0912
    Email 
    dcs.incomingpostteamdhc2@nissa.gsi.gov.uk

    Discretionary support / Short-term benefit advance

    Call 0800 587 2750 
    Email 
    customerservice.unit@communities-ni.gov.uk

    Disability Living Allowance

    Call 0800 587 0912 
    Email dcs.incomingpostteamdhc2@nissa.gsi.gov.uk

    Employment and Support Allowance

    Call 0800 587 1377

    Jobseeker’s Allowance

    Contact your local Jobs & Benefits office

    Personal Independence Payment

    Call 0800 587 0932

    If your query is about another benefit, select ‘Other’ from the drop-down menu above.

    Comments or queries about the Blue Badge scheme can be emailed to bluebadges@infrastructure-ni.gov.uk or you can also call 0300 200 7818.

    For queries or advice about careers, contact the Careers Service.

    For queries or advice about Child Maintenance, contact the Child Maintenance Service.

    For queries or advice about claiming compensation due to a road problem, contact DFI Roads claim unit.

    If you can’t find the information you’re looking for in the Coronavirus (COVID-19) section, then for queries about:

    • Restrictions or regulations — contact the Department of Health
    • Travel advice (including self-isolation) — contact the Department of Health
    • Coronavirus (COVID-19) vaccinations — contact the Department of Health or Public Health Agency

    If your query is about another topic, select ‘Other’ from the drop-down menu above.

    For queries about your identity check, email nida@nidirect.gov.uk and for queries about your certificate, email covidcertni@hscni.net.

    For queries or advice about criminal record checks, email ani@accessni.gov.uk

    Application and payment queries can be emailed to ema_ni@slc.co.uk

    For queries or advice about employment rights, contact the Labour Relations Agency.

    For queries or advice about birth, death, marriage and civil partnership certificates and research, contact the General Register Office Northern Ireland (GRONI) by email gro_nisra@finance-ni.gov.uk

    For queries about your GRONI account, email gro_nisra@finance-ni.gov.uk.

    For queries about the High Street Spend Local Scheme,  email HSSS.mail@economy-ni.gov.uk.

    For queries about:

    • Car tax, vehicle registration and SORN
      contact the Driver and Vehicle Licensing Agency (DVLA), Swansea
       
    • Driver licensing and tests, MOT and vehicle testing
      contact the Driver & Vehicle Agency (DVA), Northern Ireland

    If your query is about another topic, select ‘Other’ from the drop-down menu above.

    For queries about your identity check, email nida@nidirect.gov.uk.

     

    For queries or advice about passports, contact HM Passport Office.

    For queries or advice about Penalty Charge Notices (PCNs), including parking tickets and bus lane PCNs, email dcu@infrastructure-ni.gov.uk

    For queries or advice about pensions, contact the Northern Ireland Pension Centre.

    If you wish to report a problem with a road or street you can do so online in this section.

    If you wish to check on a problem or fault you have already reported, contact DfI Roads.

    For queries or advice about historical, social or cultural records relating to Northern Ireland, use the Public Record Office of Northern Ireland (PRONI) enquiry service.

    For queries or advice about rates, email LPSCustomerTeam@lpsni.gov.uk

    For queries or advice about  60+ and Senior Citizen SmartPasses (which can be used to get concessionary travel on public transport), contact Smartpass - Translink.

    If you have a question about a government service or policy, you should contact the relevant government organisation directly.  We don't have access to information about you.

    Related sites

    • gov.uk
    • nibusinessinfo.co.uk

    Links to supporting information

    • Accessibility statement
    • Crown copyright
    • Terms and conditions
    • Privacy
    • Cookies
    • Twitter
    • Facebook
    • YouTube
    • RSS