Information included in NIECR
Your health and social care information is needed to make sure you get the best care. The NIECR will contain information from existing electronic record systems from hospitals and clinics throughout Northern Ireland as well as some information which is recorded directly in the system, where this is helpful to your care.
This information includes:
- lab tests
- radiology results including x-rays
- investigation requests
- encounter and discharge letters from various HSC systems
Emergency Care Summary Record
If you allow information about your medicine and any allergies to be shared by your GP through the Emergency Care Summary, these will also be in your record on the NIECR.
To read more information about the Emergency Care Summary system, go to:
Only the staff caring for you will be able to look at your information on the NIECR. An audit trail will check this.
When NIECR was introduced you may have been given the chance to opt-out of having your information shared with others involved in your care. This option is currently under review, given recent changes to legislation
Key Information Summary Record
If you have a long term health condition your GP will decide if it is appropriate for you to have a Key Information Summary record (KIS) completed.
Health Care staff treating you in Northern Ireland will then be able to consult your KIS for details about your health including relevant medical history and any wishes you may have about your treatment including end of life care.
Information about a patient
Your KIS record will include:
- relevant medical history, including any long term conditions
- agencies involved with you
- list of care plans or self-management plans
- your preferred treatment arrangements
- resuscitation status
- Advance Decision to Refuse Treatment (ADRT) in place
Accessing your KIS
Your Key Information Summary record will be held at your GP Practice and will only be shared with other Health Care Professionals involved in your care if you agree to this.
Your GP will ask for your consent for your Key Information Summary to be shared in NIECR.
How your information is kept safe
Staff working in HSC services have both a legal and an ethical duty to protect the confidentiality of personal information on patients and service users.
Regular checks are made on who has looked at personal information held electronically.
The NIECR can only be accessed over the HSC secure network and patient data can be accessed only by the HSC staff who need to see it to support your care.
How HSC can use NIECR
The NIECR allows:
- doctors to check your radiology and test results on computer - this means they can look at the results as soon as they are available and your treatment can start sooner
- if your GP refers you to a hospital, information about your health can be sent to, and be triaged by, your hospital doctor in electronic form rather by post
- if you have a long term condition such as diabetes, this information will be available in the NIECR so that the different people looking after you will be able to see it and update your record within NIECR - so the latest information is available to health and social care professionals involved in your care
- the Emergency Care Summary is already in use for urgent care and includes details of your medicine and allergies from your GP - this will now be in the NIECR and available to staff involved in your care, such as outpatient clinics
- letters about you sent to your GP from hospital will be included in the NIECR - this will help inform staff looking after you about your care
How do I see my information?
You have a right under data protection legislation to obtain a copy of information held about you. If you want to see the information held about you, or ask about how we use it, we would suggest as a first step an informal approach to your GP or other HSC professional that you may be seeing.
To formally request access to your NIECR, or any health and care record (a Subject Access Request) you need to write or speak to your GP Practice or the Health and Social Care Trust where you are receiving or have received care.
In most cases, the deadline for response will be one calendar month, although this can be extended to 3 months where a request is deemed ‘complex’.
NIECR Privacy Notice
The NIECR Privacy Notice which gives information about how your personal information is used, can be viewed on the eHealth and Care website.
More information about NIECR
For more information about the NIECR, contact: